Sick Lives Matter

Great read, thank you!

aBodyofHope

Sick Lives Matter

I was messaging with my therapist recently, frustrated with the challenge of trying to find a treating pain management specialist under my new insurance. Sharing with her how angry I’ve been in recent years after being brushed aside by more than a dozen physicians I’ve looked to for help (messaging because speaking on the phone or seeing my therapist in person is out of the question for me). She rationally offered advice like, “Did you ask your last doctor for a referral for a new pain doctor?” And, “Have you tried seeing any specialists for your conditions? Why are you in so much pain? How about taking more pain medication?  No one should be suffering like you are.”

Why did her rational, reasonable solutions make me want to scream?! Maybe because after over a decade of chronic illness, I know that her innocent view of medical care is like the…

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Precious Diagnosis: What’s in a Name?

What a great way to express that process. Thank you for sharing it.

aBodyofHope

radiograph_of_my_sorrows_by_nataliadrepina-d77qw55Radiograph of my Sorrows by Natalia Drepina 

Even if it’s a terrible diagnosis, you crave even the worst titles, just to have a name. Just to put a label on what your body is experiencing. You dream of a diagnosis for the madness eating away at your body and your life.

You want to scream when test after test comes back normal, appointment after appointment with no answers, and you wonder how much longer your body will hold out like this! Each frustrated physician and healer is at a loss and they know anything more they try could likely only make you worse. So one by one, they set you free into the river of uncertainty to face the un-named beasts in you alone– ALONE.

Instead of one diagnosis, you have a list of conditions that you don’t feel are your own. They are more like guesses your…

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